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Strive>>Survive>>Thrive
Follicular Lymphoma. Context, Insight and Clarity
22 years since diagnosis, "retired" college dean offers balanced information, guidance and support, enabling follicular lymphoma patients to make informed decisions leading to long-term active, healthy, survival
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Welcome to our site...Celebrating more than 10 years with over 2000 active members world-wide, it has been created to provide:
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a personalized, human touch
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the most reliable, understandable information and support available *anywhere* for patients with follicular lymphoma
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the information I wish had been available when diagnosed 22 years ago
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The July 2010 Newsletter has been posted to the site with the following topics:
Photo by Svet: "Scarlet Lily in Summer Flame"
Introduction
1. 40 "Must Know" Things Learned After 22 Years (Especially Important for Those Newly Diagnosed)
2. Sleep...sleep...sleep...and Stress
3. Let the Cancer Cells Die on Their Own
4. Making Sense of Vitamin D
5. Meat and Lymphoma Risk...Not What You May Think
6. Significant New Lymphoma Risk
7. Nuggets in the Pan (Cherries, Immunoglobulin Follow Up, Tea Tree Oil and Why, Sinus Congestion Finale, Lemon Peel Anyone)
+++++++++[]+++++++++What Will Be Gained From This Site?
When diagnosed with follicular lymphoma many patients want to do all they can to help themselves, but don't know where to begin. There's a lot to learn and a lot that can be done.The information and support here gives them control in formulating an optimal plan for 20++ years of active, healthy survival.You will learn that follicular lymphoma is NOT a death sentence. The prognosis is better than many first think. Most people have had it unknowingly for many years. Living a long, full, active life unaffected by follicular lymphoma IS possible.
Follicular lymphoma is a confusing, controversial disorder where a cure remains elusive and health professionals often disagree on the best approach.
To optimize the chances for long-term success, it is very important that patients know about causes and risk factors, be able to understand the diagnosis, recognize the symptoms and be aware of what treatments are available, how these treatments work and what the treatments, both chemotherapy and radiation, can and cannot do...
and, so important, you get it ALL here in one location...reliable information... up-to-date, easy to understand; with personal back-up and help if you need it.
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About This Site and Its Community of Members Worldwide
* We do not provide medical advice, but try to ensure that members are aware of all options for follow-up discussion with their doctors.* This service has been established for over 10 years, and is the most prominent survivor-managed website in the world devoted exclusively to follicular lymphoma.
* Numerous expressions of satisfaction and gratitude are received, a few of which are listed in What the Members Say.* The site is committed to "balanced objectivity"; thus there is no advertising on the site, no hidden affiliation with drug companies nor are there products to sell.
* We are proud to say that the site is supported 100% by membership contributions.
* There are several doctors in the group both as patients and caregivers. People come from all walks of life, with a variety of backgrounds.
* People who benefit most are inclined to be "patient advocates". They want to learn all they can. They express a desire to work with their doctors in a partnership role.
* Members may wish to gain encouragement and information from those with personal experience on our discussion board.
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"I see this as a chronic disease. The goal is to keep it quiescent for as long as possible while maintaining quality of life and hopefully improving survival"...
...Dr. John Leonard, Clinical Director at the Center for Lymphoma, Cornell University, New York.
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Highlights--> It is critically important for all patients/caregivers to understand the nature of this confusing disorder. The article, Overview of Follicular Lymphoma, updated to April 2010 provides this knowledge, step by step, all in one place.
--> To review our Topic Index, please click on the button to the left
--> The article "Street-Smart" Guide to the Management of Follicular Lymphoma dated April 2010 provides an easy-to-understand summary of all key points.
--> The "flagship" article, Follicular Lymphoma: Targeted Natural Strategies for Long-Term Survival has been updated to February 2010.
--> The article Transformation has been updated to November 2008.
--> The article Optimizing Chemotherapy has been updated to April 2010.
--> The article My Personal History has been added.--> Our Discussion Board just for members is in operation. See instructions for use at the bottom of this page.
--> It was indeed a pleasure to give the first seminar, "Follicular Lymphoma: Management From a Patient's Perspective Leading to Long-Term, Healthy Survival", in Seattle. More than 40 members, all looking remarkable healthy, came from all corners of the continent.
Can I Help?My name is Robert G. Miller. Please see About Me
To contact me re *administrative* details, call 1-888-333-5265 toll free USA and Canada...best from 10 AM till Noon Pacific Time (1 PM to 3 PM Eastern)
How This Site Can Help You
Upon becoming a member, information and guidance will be provided in a friendly, supportive, and balanced manner.
The complete membership package, available nowhere else, consists of six items:
1. The basic articles
2. Monthly newsletters
3. Regular updates and new articles
4. Email guidance/support (if requested)
5. Phone guidance/support (if requested)
6. An exclusive Discussion Board just for members
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"If you have a vision of success of what life really means to you, and are ready to say 'yes, it's time to get started', then we're here to help with the best information and support on the net."
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Best in Health,
Robert G. Miller
"Alive, Well and Updated to July 28, 2010"
Strive>>Survive>>Thrive
"There is Life After Lymphoma...Lots of It"
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Integrative medicine emphasizes the combination of both conventional treatments and scientifically-based natural approaches to address the biological, psychological, social and spiritual aspects of health and illness. In addition, this website emphasizes respect for the human capacity for healing and the importance of the relationship between the practitioner and the patient.
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Disclaimer
This website presents INFORMATION based on the research and personal experiences of the author. It is NOT intended to replace or be a substitute for professional consultation with a physician or other health care provider. The author cannot be held responsible for any adverse effects, results or consequences resulting from the use or application of the information on any page of this site.
