| Home |
| About Me |
| Articles & Newsletters |
| What the Members Say |
| Registration |
| Members Section |
Bringing Context, Insight and Clarity to the Challenges Arising from a Diagnosis of Follicular Lymphoma
*****
21 years since diagnosis as of July 2009, "retired" college dean offers balanced information and guidance...from a patient's standpoint...with lymphoma patient support, leading to long-term active, healthy, survival with follicular lymphoma
+++++++++[]++++++++++
Strive>>Survive>>Thrive...That's what it's really all about...not just the first one and maybe the second.
It was great to get away camping and hiking, if for only a week.
I plan to be back here on line until about July 10 after which I'll be away on another outdoor excursion for several weeks. During this time internet access will be sporadic. New members may still register, but response time may be delayed. Existing members will still be able to access the articles, newsletters and the discussion board.
All the Best,
~ Robert
+++++++++[]+++++++++++
"The human aspect of integrative medicine…never mentioned…is that it requires not only those who think with their heads, but those who KNOW with their hearts"…Robert G. Miller
+++++++++[]++++++++++
-->The June 2009 Newsletter has as been posted to the site with the following topics:
Photo by Svet..."The Beauty of Springtime Wisteria"
Introduction1. Barriers in Achieving Optimal Vitamin D
2. The A>B>C Facts re Vitamin D in the Body
3. New Research: Low Vitamin D Linked to Cancer Development
4. "Until Now, I Had a Plan"
5. High-Dose Resveratrol
6. Radiation for Early Stage Follicular lymphoma
7. Early Development of Follicular Lymphoma
8. Follicular Lymphoma…Risk Within Families
9. Why Cancer Vaccines May Not Work
10. Ginger…Tested in a Double Blind Trial
11. Update Link on Chlorambucil and Other Chemo Protocols
12. Overview of Treatment Options and Clinical Considerations for Managing NHL Patients
13. Red Blood Cells…Can You Imagine?Summary
+++++++++[]+++++++++What Will Be Gained From This Site?
First of all, you will learn that follicular lymphoma is NOT a death sentence. Most people have had it unknowingly for many years. Living a long, full, active life unaffected by follicular lymphoma IS possible.
However, follicular lymphoma is a confusing, controversial disorder where health professionals often disagree on the best approach. Thus, to optimize the chances for long-term success, it is very important that patients know about causes and risk factors, be able to understand the diagnosis, recognize the symptoms and be aware of what treatments are available, how these treatments work and what the treatments can and cannot do.
From the basic articles and monthly newsletters you will also learn:
--> that a cure for most stages and grades of follicular lymphoma remains elusive
--> some cases, depending on staging and grade may be curable
--> certain treatments offer the hope of a cure
--> that survival rates have improved over the last few years with newer treatments
--> what factors from the diagnosis (pathology report) predict the prognosis (outlook) in the years ahead
--> what symptoms to be aware of that may point to the need for treatment
--> about the confusing matter of transformation
--> all about the best scientifically-based targeted natural strategies that can be adopted to help hold things in check, possibly even leading to natural regression
--> the merits of an integrative (not alternative) approach toward achieving long-term success (see bottom of this page)
...and, so important, you get it ALL here in one location...reliable information... up-to-date, easy to understand; with personal back-up and help if you need it.
+++++++[]+++++++
About This Site and Its Community of Members WorldwideWe do not provide medical advice, but try to ensure that members are aware of all options for follow-up discussion with their doctors.
This service has been established for several years, and is the most prominent survivor-managed website in the world devoted exclusively to follicular lymphoma. Numerous expressions of satisfaction and gratitude are received, a few of which are listed in What the Members Say.
The site is committed to *balanced objectivity*; thus there is no advertising or products to sell. We are proud to say that the site is supported 100% by membership contributions.
Our membership community includes over 1200 active, current people from all over the world. Many are caregivers. There are several doctors in the group both as patients and caregivers. People come from all walks of life, with a variety of backgrounds. There is no single "face" to follicular lymphoma.
They usually believe that the human body has some capacity for healing; that this type of lymphoma can be controlled; that there are things a pro-active person can do to make a positive difference. These people are certainly open to conventional treatment when needed, but are often not willing to rely upon that alone.
++++++++[]++++++++
The Fundamental Truth
Treatments are a very important part of the long "journey" for most patients, especially if transformation should develop. But they are limited in number and resistance sets in quickly. Relying on treatments alone is like fighting the battle with one arm behind one's back. Carefully chosen scientifically-based, targeted natural strategies (not all dietary...now proven in recent research to inactivate cancer genes), should be incorporated into the long-term plan in an *integrative* fashion to optimize the patient's chances for long-term active, healthy survival.
++++++++[]++++++++
"I see this as a chronic disease. The goal is to keep it quiescent for as long as possible while maintaining quality of life and hopefully improving survival"...
...Dr. John Leonard, Clinical Director at the Center for Lymphoma, Cornell University, New York.
+++++++[]+++++++
Highlights-->It is critically important for all patients/caregivers to understand the nature of this confusing disorder. The article, Overview of Follicular Lymphoma, updated to June 2009 will provide this knowledge, step by step, all in one place.
--> The "flagship" article, Follicular Lymphoma: Targeted Natural Strategies for Long-Term Survival has been updated to June 2009.
--> The article Transformation has been updated to November 2008.
--> The article Optimizing Chemotherapy has been updated to June 2009.
--> The article My Personal History has been added.--> Our Discussion Board just for members is in operation. See instructions for use at the bottom of this page.
--> It was indeed a pleasure to give the first seminar, "Follicular Lymphoma: Management From a Patient's Perspective Leading to Long-Term, Healthy Survival", in Seattle. More than 40 members, all looking remarkable healthy, came from all corners of the continent.
Can I Help?My name is Robert G. Miller. Please see About Me
To contact me, please read the section below, then call 1-888-333-5265 toll free USA and Canada...best from 10 AM till Noon Pacific Time (1 PM to 3 PM Eastern) to arrange details.
How This Site Can Help You
Upon becoming a member, information and guidance will be provided in a friendly, supportive, and balanced manner.
The complete membership package, available nowhere else, consists of six items:
1. The basic articles
2. Monthly newsletters
3. Regular updates and new articles
4. Email guidance/support (if requested)
5. Phone guidance/support (if requested)
6. An exclusive Discussion Board just for members (See bottom of this page).
++++++++[]++++++++
Best in Health,
Robert G. Miller
"Updated to July 2, 2009"
"There is Life After Lymphoma...Lots of It"
++++++++[]++++++++
Integrative medicine emphasizes the combination of both conventional treatments and scientifically-based natural approaches to address the biological, psychological, social and spiritual aspects of health and illness. This website and our sister site Prostate Survival { http://www.ProstateSurvival.com } emphasize respect for the human capacity for healing and the importance of the relationship between the practitioner and the patient.
++++++++[]++++++++
Instructions for Using the Discussion Board
**Note**: The Discussion Board is a separate entity from the membership database. Only members can use the Board, but to do so requires a second registration. Use only Internet Explorer...not Mozilla Firefox or any other system. Also some Mac computers are not compatible.
1. First time users must register for the Discussion Board before logging in and using it.
2. To get started, click on either the Members Section button or the Discussion Board button here on the site and enter your membership data, then click on Discussion Board under the heading Member Control Panel.
3. On the page that pops up, to register, click on the Register button on the top left of the page.
4. Click on the applicable period of birth...the one on the left.
5. Read the terms of usage and click on the "I agree..." button.
6. Complete the Registration Table [Note: It is suggested that you use the same username and password used for membership log in, but you don't have to. However, usernames for the discussion board must be at least 3 characters long].
7. Enter the Confirmation Code.
8. Confirm that "your account has been created".
9. Go to the email address you entered above in step 6.
10. Click on the link in the email you received to activate your registration. [Note: It can happen that your registration does not work. This is usually because someone else already registered has taken your chosen username, in which case you will need to select another just for the discussion board...then re-register for the board. Keep the same data you already have for general membership access. Please write these combinations on a stick note next to the computer].
11. Once you've registered, go to the website at http://www.LymphomaSurvival.com click on either the Members Section button or the Discussion Board button and log-in as usual, then click on Discussion Board.
12. Click on Log In button at upper left of the page; then enter your username and password.
13. Click on "Discussion" near the top of the page.
14. Read the postings, and post on your own if you wish.
15. When returning to use the Board, start at # 11 above.
16. After you've done this two or more times, you're a "pro" no matter how old you are and are all set to impress the group with a wise and profound posting!
~Robert
+++++++++++++++++++++++++++++
Disclaimer
This website presents INFORMATION based on the research and personal experiences of the author. It is NOT intended to replace or be a substitute for professional consultation with a physician or other health care provider. The author cannot be held responsible for any adverse effects, results or consequences resulting from the use or application of the information on any page of this site.
