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Approaching 20 years since diagnosis, no treatment since 1998 with ongoing natural regression, well and fully active "retired" college dean offers balanced information and guidance...from a patient's standpoint...with lymphoma patient support, leading to long-term active, healthy, survival with follicular lymphoma
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-->The May 2008 Newsletter has been posted to the site with the following topics:
Photo by Svet...Springtime Renewal...Magnolia Blossoms in Seattle
Introduction
1. Prominent Doctor "Extremely Low" in Vitamin D
2. Key Points re Vitamin D with a Personal Plan of Action
3. Epigenetics
4. Food Compounds That Kill Test-Tube Cancer Cells
5. Vitamin Supplements May Cause More Harm Than Good
6. Revlimid/Rituxin Treatment at M.D. Anderson for Relapsed fNHL
7. Root Canals
8. Statin Caution re Rituximab
9. Secondary Cancer after Zevalin
10. Nasty Springtime Chemicals
11. Latest Info on the Role of the Microenvironment re Survival with fNHL
12. Last Casts (Vacation Notification, Vancouver/Seattle Lymphoma Education Forums, Longer Days/Lower Melatonin, Bill C-51, Energy Fix Trumps Cancer Cure, "Gem of the Day")
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Follicular lymphoma is NOT a death sentence. Most people have had it unknowingly for many years. Living a long, full, active life unaffected by lymphoma IS possible.
Several factors enter the picture, but an *integrative* approach (not alternative..see below at bottom of the page), combining the latest information on conventional treatments coupled with the adoption of scientifically-based lifestyle strategies...harmonized together by the pro-active patient, gives one the best chance for active, healthy survival...for decades.
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"I see this as a chronic disease. The goal is to keep it quiescent for as long as possible while maintaining quality of life and hopefully improving survival"...
...Dr. John Leonard, Clinical Director at the Center for Lymphoma and Myeloma and Associate Professor of Medicine at Weill Medical College of Cornell University, New York Presbyterian Hospital, New York, New York.
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What does the follicular lymphoma patient really want...and need?Our membership community includes over 1100 active, current people from all over the world. Many are caregivers. There are several doctors both as patients and caregivers. People come from all walks of life, with a variety of backgrounds. There is no single "face" to follicular lymphoma.
We do not provide medical advice, but try to ensure that members are aware of all options for follow-up discussion with their doctors.
People who benefit most are inclined to be "patient advocates". They want to learn all they can. They express a desire to work with their doctors in a partnership role. They may wish to gain encouragement and information from those with personal experience on the discussion board.
They usually believe that the human body has some capacity for healing; that this type of lymphoma can be controlled; that there are things a pro-active person can do to make a positive difference. These people are certainly open to conventional treatment when needed, but are often not willing to rely upon that alone for this generally incurable disorder.
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Highlights-->The article, **Follicular Lymphoma: Targeted Natural Strategies for Long-Term Survival** has just been updated to February 2008.
-->Acclaimed journalist, singer-songwriter and lymphoma survivor Jamie Reno, has just released an informative and inspirational book, "Hope Begins in the Dark", about 50 survivors, many of whom are members on this site. This book is highly recommended for those newly diagnosed. Access information is available to members.
-->Our **Discussion Board** just for members is in operation. See instructions for use at the bottom of this page.
-->It was indeed a pleasure to give the first **seminar**, "Follicular Lymphoma: Management From a Patient's Perspective Leading to Long-Term, Healthy Survival", in Seattle. More than 40 members, all looking remarkable healthy, came from all corners of the continent.
-->It is critically important for all patients/caregivers to understand the nature of this confusing disorder. The article, **Overview of Follicular Lymphoma**, updated to May 2008 with 25 easy-to-understand pages, will provide this knowledge, step by step, all in one place.
My name is Robert G. Miller. Please see About Me
To contact me, please read the section below, then call 1-888-333-5265 toll free USA and Canada...best from 10 AM till Noon Pacific Time (1 PM to 3 PM Eastern) to arrange details.
How This Site Can Help You
* You will learn that follicular lymphoma is a confusing and controversial disorder...often in the initial stages a benign-like condition, much different than what people may regard as "cancer". The person often feels well with no symptoms and treatment may be withheld until needed.
* It will be clear that the best chance of success comes from learning about treatments...what they can and cannot do...and combining that with the best in scientifically-based natural strategies targeted specifically to follicular lymphoma to help hold the lymphoma in check, perhaps even lead to natural regression.
* Information and guidance will be provided in a friendly, supportive, and balanced manner.
* The complete membership package, available nowhere else, consists of six items:
1. The basic articles
2. Monthly newsletters
3. Regular updates and new articles
4. Email guidance/support (if requested)
5. Phone guidance/support (if requested)
6. An exclusive Discussion Board just for members (See bottom of this page).
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The site is committed to *balanced objectivity*; thus there is no advertising or products to sell. Expenses are offset by membership contributions.
You are invited to join our group as outlined in the Registration page.
Best in Health,
Robert G. Miller
Alive, Well and Updated to May 9, 2008
"There is Life After Lymphoma...Lots of It"
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Disclaimer
This website presents INFORMATION based on the research and personal experiences of the author. It is NOT intended to replace or be a substitute for professional consultation with a physician or other health care provider. The author cannot be held responsible for any adverse effects, results or consequences resulting from the use or application of the information on any page of this site.
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Instructions for Using the Discussion Board
Note: The Discussion Board is a separate entity connected to the website. Only members can use the Board, but to do so requires a second log-in.
1. First time users must register for the Discussion Board before logging in and using it.
2. To get started, click on either the Members Section button or the Discussion Board button here on the site and enter your membership data, then click on Discussion Board under the heading Member Control Panel.
3. On the page that pops up, to register, click on the Register button on the top left of the page.
4. Click on the applicable period of birth...the one on the left.
5. Read the terms of usage and click on the "I agree..." button.
6. Complete the Registration Table [Note: It is suggested that you use the same username and password used for membership log in].
7. Enter the Confirmation Code.
8. Confirm that "your account has been created".
9. Go to the email address you entered above in step 6.
10. Click on the link in the email you received to activate your registration. [Note: It can happen that your registration does not work. This is usually because someone else already registered has taken your chosen username, in which case you will need to select another. Please write these on a stick note next to the computer].
11. Once you've registered, go to the website at http://www.LymphomaSurvival.com click on either the Members Section button or the Discussion Board button and log-in as usual, then click on Discussion Board.
12. Click on Log In button at upper left of the page; then enter your username and password.
13. Click on "Discussion" near the top of the page next to "Lymphoma Survival".
14. Read the postings, and post on your own if you wish.
15. When returning to use the Board, start at # 11 above.
16. After you've done this two or more times, you're a "pro" no matter how old you are and are all set to impress the group with a wise and profound posting!
~Robert
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Integrative medicine is a new term that emphasizes the combination of both conventional and alternative approaches to address the biological, psychological, social and spiritual aspects of health and illness. It emphasizes respect for the human capacity for healing, the importance of the relationship between the practitioner and the patient, a collaborative approach to patient care among practitioners, and the practice of conventional, complementary and alternative health care that is evidence-based...U.of California, San Francisco School of Medicine.