What the Members Say

Comments of the Month:

January 2010...We can't tell you how much your web site means to us...Joyce, Michigan

I still enjoy and learn lots from your newsletters after 6 years...Judith, Ontario

You give us so much hope for the future and so much insight into how we can be active participants in this whole journey...Lee

This informative site has helped me become so proactive in my own care...Nancy, Maryland

You have literally given me hope and no amount of money can pay for that but a big thank you…Deb

We are very grateful for the service you do for so many. I cannot tell how much!...Tish, California

November 2009...I look forward to receiving your well researched and thought-through information each month. I have learned so much about myself, my good health and my well-being...thanks to you!...Bridgette, Montana

I admire you for being wise, talented and altruistic and I hope to continue for many years in your company!...Valerie, France

I am so grateful for your work and generosity in sharing it...Elaine, British Columbia

Thanks again for everything. Words can't express how much your site means to me...Brooke, California

I'm 4 years "watch and wait" with two little girls. I just might see them walk down the aisle at their weddings because of you!...Shelly, Ontario.

October 2009...As a new member, your web site is brilliant, so much to know, so much to learn, so much information , so bloody confusing, now the picture is coming into focus, I can now start a plan with rationale behind it, not spin, thanks again...Les, New Zealand.

We are out of the dark,scary place because of your work...Shannon, Ontario.

September 2009...Your website has served as a guiding light through the dark and dreary corridors we have traveled because of this disease. You have educated us and our doctors and I am sure you have given us the tools to increase survival times. Thanks from the bottom of our hearts!...Janet, Illinois

August 2009...The site has given me much needed certainty when there is so much unpredictability out there for lymphoma patients And I cannot wait for the newsletter each month...Ho...Michigan

Your information, encouragement and continued support has been invaluable...Gayle, Washington

July 2009...Just wanted to say thank you, it is a fantastic website, very informative and helps us a lot. I am impressed how you have managed to maintain it like this, it is a lot of work and we appreciate...Jorge, Belgium

Love your newsletters. You must be the most current informed person in the world on fNHL...Kev, California

Just past my 2 year anniversary. Thank you for the comfort and knowledge you have given me. You have made this journey a lot less scary...Jenny, California.

June 2009...Thank you for the most informative website with its sensible and well informed suggestions. It has been of great help to me and a wonderful source of encouragement. Stay well and keep up the good work...Clive, Germany

We would be in a different place altogether without knowing what we have learned through your research...Mary K, New York

Thank you for taking the time to talk with me on the phone. I really appreciate all the research you have done. Your site is very helpful....Lori, Texas

May 2009...I really appreciate the time and effort you put into the research, and making it understandable for the rest of us...Mary Jane, New Zealand

April 2009......I've logged on successfully and started sampling the articles, newsletters and discussions. This all seems too good to be true! Thank you for making this website, the wonderful information and opportunities for connection with others....David, Massachusetts.

I want you to know how much your help meant to me early on when we talked on the phone and also through the newsletters. Thanks again for all you contribute to both the health and peace-of-mind of those with lymphoma and those who care for them...Carol, Ontario.

March 2009...Welcome to the best website ever!  It has been my savior since diagnosis in 2006...Karen, North Carolina

You continue to be such an inspiration and this service such a blessing. My health continues to hold and I'm sure in good measure as a result of the changes I've made in my life recommended by your materials...David, Nova Scotia

February 2009...I continue to welcome your newsletters. Your research and extensive information has been of great importance to me, providing a far more optimistic view of the road ahead....Oliver, Ireland

January 2009...You just wouldn't be able to comprehend the impact that you have had in our lives....Mary Lou

December 2008...I can't thank you enough for providing the most up-to-date information available. Before discovering your website I was insecure. That has completely changed around knowing there are strategies I can use to keep my health as buoyant as possible...Jean, Australia

November 2008...I just want to say "thanks". Thanks for making the effort, for doing the research, for putting yourself out there and sharing and helping so many people...Jo, Australia

October 2008...I really enjoy reading your monthly newsletter. It's full of interesting and rewarding information. I am so glad I found you on the internet. It made my life a lot easier...Brigitte, Montana

September 2008...Many times I have found your articles to be the clearest synthesis of the information that is out there. It has been tremendously comforting to be able to refer back to your explanations, designed for an intelligent, lay audience....Andrea, Masschusetts

Your newsletter continues to be informative, comforting, terrifying and inspiring all in one...Carol, British Columbia

August 2008...I've seen many (health care providers), read several books, and spent countless hours reading articles on the internet but your www.LymphomaSurvival.com site stands head and shoulders above anything else...Craig, Oregon.

July 2008...I have spent hours looking at the info on your site and all I can say is WOW!...Anne, Colorado

Thanks for all your knowledge in this field. I've got more from you over the last 5 years than all the docs I've seen!..Deb, Ontario

Your service came along right as I needed it. Can't thank you enough...Paul, Washington

I'm happy to have your monthly support both psychologically and informatively...Jan, Germany

June 2008...To have found a site specifically devoted to this condition and which is so aligned to my own beliefs and approach to life in general is a huge gift. Already I have made changes that I can tell are beneficial to my energy levels...Donna, Massachusetts

May 2008...The sample article was very informative and I went to one of the links where I listened to several webcasts. I found the article easy to read and yet it went way beyond any of the introductory articles I had found elsewhere...Phyllis, New York.

Thank you Robert for being a constant source of hope and inspiration...Doug, Kansas

Great information. I have been faithful to your morning suggestions on food intake. My cancer continues to shrink. Thank you for your suggestions...Bob

April 2008...Your sample article was amazing...thank you for the work you've done...Martha, Oregon.

Your sample article gave me more specific info than I've been able to find anywhere...Carolene, B.C.

Thanks so much for creating such a useful, supportive service and for the calls you've answered personally and the helpful info...Carol...Ontario

March 2008...You have given us both hope and an immense amount of inspiration. Not to mention a HUGE store of information...Ellen, Massachusetts

Thanks for all your work on this site. I just read your latest issue. Yes, it's a lot of work, but believe me when I tell you this impacts people in a very positive way...Charlie

February 2008...I so much appreciate your newsletter. You have no idea how much it means to me to have this targeted communication that is focused so specifically on our bizarre disease. There is no way to express how much of a feeling of comfort and stability, not to mention invaluable info I receive from knowing this will be faithfully sent to me each month...Karen, Massachusetts

Thank you so much for your inspiration, knowledge and hope...Wendy, New York

I don't know what I'd do without your newsletters and articles...Donna

Thanks for this helpful newsletter...Marilyn, Missouri

January 2008...I have every reason to believe that following your monthly advice has made a major contribution to my remaining in excellent health 3 full years after diagnosis...Ben

December 2007...My doctor sent me your website. I am excited to be a member and know I can learn much from you and other members...Beth, Virginia

Just finished the December newsletter. I can't tell how much I apprecitae all the hard work you put into maintaining this website and updating content each month. This site along with my doctors continue to be my true north in living with and battling this disorder...Tom, New York

November 2007...I really appreciate your personal availability, your commitment to thorough research, and your practical but sensitive presentation. Like so many, I'd be 100 times more anxious and considerably less educated and...I  believe...healthy...KK

Thank you for helping me survive!...Judy, Kansas

October 2007...You've done an excellent job with your site. I'm convinced you're saving many lives, and maybe my own as well...Rik, Ohio

September 2007...We have been members for a few years now, and your site has been recommended to so many of our friends...Thank you for continuing to provide the BEST for lymphoma patients...Carol, Hawaii

August 2007...You have always been there to answer my questions and to help me on decision making. In fact, I've learned how to take control of my own situation through your encouragement and brilliant research. The oncologists are just part of MY team!...MJ

July 2007...Your website with all the essential research and clearly, succinctly written information has been a Godsend to our family...Marsha, Tennessee

June 2007...Many thanks for research and literary efforts you put into the website. It has been an invaluable resource for me and I look forward to reading each issue (of the monthly report)...Clive, Germany.

May 2007...(Following diagnosis) your website meant a great deal to (my wife) and me. It was a tremendous help in letting us know what to expect and planning for chemotherapy. I read the newsletter each month and always find it inspirational...Doug, Kansas.

April 2007...Thank you for listing Dr. A in one of your (monthly reports)....I came away with a whole new sense of life...your website and discussion board have really been invaluable for me...Karen

March 2007...I cannot thank you enough for your efforts. Your letter and information has made it so much easier for me to face and understand my disease....BT, British Columbia

February 2007...Thank you, Robert. The (sample) article is so informative. Nothing on the internet compares to this...QDT, Minnesota

January 2007...As I read your materials, I'm becoming more hopeful. Moreover they are just the thing I need right now to jump in with both feet and really delve into the material...You have a unique talent in making the material understandable while communicating the complexities of fNHL in a way that is not overwhelming...That means so much to people like me who need to understand the material quickly...Pam, Caregiver, California.

December 2006...I'm now two years post-treatment and all tests show me to be in good health. Your newsletters provided me with much encouragement and support after diagnosis and during treatment. Your regimens and research provided me with information that gave me the feeling that I was in control and could do positive things to improve my health...Terri

November 2006...I have had no treatment to date and I just wanted to thank you sooo very much for all your information. I got my results last Wednesday and all of my
nodes had shrunk!!!!!! My doctor brought another doctor in with him and
wanted to know "What I was doing????" So I told him about you and all of the
good information you share with us. I am doing all of the natural targeted
strategies that you have suggested and WHAT GREAT RESULTS!!!!!! Jennifer, Texas

October 2006...My wife and I appreciate tremendously the service you provide. Your encouraging and informative newsletters are an incredible blessing for us. Currently there is no evidence that I have the disease. My diet and lifestyle have changed dramatically as a result of your recommendations...John, Delaware.

September 2006...Thanks so much for providing this service. I have found that my disease has been manageable since following your recommendations. The natural therapies have given me my life back...Linda, Wisconsin.

August 2006...I have been following most of the strategies targeted for long-term
survival, since reading of them in June.

I have also had 3 consultations (at major centers). All of the specialists agreed that my lymphoma had progressed to where chemotherapy was warranted. I dragged my feet, and was to 'bite the bullet' and start a round of chemo this morning.

On Wednesday, following a set of scans on Monday, I received a call from my oncologist's office explaining they were cancelling chemo. It seems my nodes have all decreased by at least 50% (except one that remained about the same size).

So, today I went to work, had a late lunch with my fiance, and we talked about how wonderful our life is. There is a huge party at our house this weekend.
My kids are so happy. Your gifts of fine research are so incredibly appreciated...Mary, New York

July 2006...Your info was worth its weight in gold and I look forward to the next event...I've decided to take charge of my care which I believe I can do with this complex disease because you are providing the knowledge that I need. Robert, there is just no way to put a price on that service...Art, N. Carolina

June 2006...Thank you for a wonderful seminar! I thoroughly enjoyed it....For the first time since my diagnosis I felt such "humanness" in your offerings...that I'm not just another statistic, but a human being. Your seminar gave me such an incredible sense of empowerment..and that I CAN do something about my fNHL...Polly, Washington

May 2006... I cannot let another day go by without sending you a note of deep appreciation. Your website is valuable, caring, evidence-based and just what I needed!...Elaine, Alberta

April 2006...(Your site) is exactly what we were looking for. We are still scared half out of our minds, but your information has been timely, reassuring, balanced and appropriate to our sensibilities...Brad

March 2006... Thanks just doesn't seem like a large enough word for your work and commitment. We so appreciate all you do on behalf of those with follicular lymphoma. The website is priceless. What a great vision!...Grant, Alberta

February 2006...*I value the information I receive from you more highly than from any other source and I credit my continued excellent health, confirmed by quarterly blood tests, in very large part to your diet and health advice...Rich, Illinois.

*I can't thank you enough for your website. If I hadn't read the Zevalin alert in your newsletter, I would never have made the connection between Rituxin and my skin problems in time to stop the maintenance treaments (in consultation with my oncologist)...Name Witheld

January 2006 ...Your writings are for me the most valuable things on the web and I eagerly look forward to each one...Ben, New Jersey.

December 2005 * That is very kind of you and the Best Christmas Present I could ever receive. Thank you from the bottom of my heart. All the best to you and I do hope for a better 2006. Again, thank you for your generosity...Anne

* Nowhere else have I found so much pertinent data, information and ideas to develop my own research on our illness, with the opportunity to discuss and exchange experiences in a friendly way with someone facing the same problem...Denis, France.

November 2005 I never miss your monthly newsletter, and each time I read your special articles and the newsletter I discover another piece of previously "undetected" information...Diane, Texas.

October 2005 What a difference facing the oncologist for the first time armed with the knowledge (mainly from your page) made for me. Instead of him telling me what I was going to submit to, bone marrow test, PET scan, maintenance Rituxin every six months, I told him. So for now it's KALL (Knowledge, Action, Learn and Live) for me....Peggy

September 2005 I feel like I know you through your articles and newsletters. They give me hope and encouragement I need daily to fight lymphoma while providing the best insight and suggestions I have come across in researching this disease...Your research and sharing of invaluable information cannot be given enough praise...Forever grateful....Sue M.